About Me

My photo
For those of you that don't know, I was diagnosed with ALS in March 2007. After two more opinions, the diagnosis was confirmed in the fall 2007 at age 39. This coming August (2010) I will have been married for seven years to an incredible wife, who has supported me throughout. During the course of our marriage we have been lucky to have two wonderful, amazing daughters. Sydney, will be 5 in November. Emily, will turn 2 1/2 in August. Currently, we reside in New Jersey with our Beagle, Trixie.

Friday, May 31, 2013

Post 42 - Freezing My Wheels off!

As many of you know, over the past three years, we have walked at the greater Philadelphia ALS walk to raise funds for ALS research and to support families battling this horrific diseases.  This walk always has taken takes place the first Saturday in November.  Each year, it has gotten increasingly colder. the first year, I was able to walk the walk, being a little bit more mobile and therefore, a little bit warmer.  The second-year (2011) I used my wheelchair, and although it was not that cold (temperatures in the low 40s), there was a stiff wind blowing, that made it very brisk.  Last year, it was both cold and windy, making it very uncomfortable for everyone.  The fact that I wore a hat and had two blankets did little to warm me up.  I still froze my wheels off!

Therefore, I have made an executive decision.  The ALS Wing Fighters will be leaving the desolate, dreary, draftee parking lot at Citizen Bank field, in early November for the sandy, serene shores of Ocean City, New Jersey for the third Saturday in September.  I'm usually not one to mess with tradition, but in this case I am opting to keep all 10 of my fingers and toes.
me, with my victory cigar.

I recognize that this decision may affect participation for some of you that have walked in the past.  I understand that this walk may be taking place in conjunction with your child's soccer, football, cheerleading, etc. activity and realize that they may take precedent (when I was a kid nothing could drag me away from one of my games.  Once, I even delayed a family trip to California to play in a makeup little league game.)  Even so, I hope that this does not deter you from assisting us in once again raising donations.

The walk information is as follows:

Saturday, September 21, 2013
10 AM
6th Street Athletic Complex
Ocean City, New Jersey

Over the past three years, as a team, we have raised nearly $30,000 and have had over 80 people, on average, walk with us each year.  For those that have walked with us in the past, I hope you will continue to do so.  For those who have not, consider this your invitation to join us.  Either way, I hope you will consider making a donation and if possible, signing up to help raise donations.  Even if you are unable to walk, you can still raise money by signing up as a virtual walk (it will be our little secret.)

You can join our team and sign up for the walk by clicking on the following link: ALS Wing Fighters, or by pasting the following link into your website browser: http://oceancitywalk.kintera.org/faf/search/searchTeamPart.asp?ievent=1044587&lis=1&kntae1044587=C768FF6E642B47A9BFD68AAA657338D8&team=5533897

No comments:

Post a Comment