I have made some additions to the blog, including the ability to sign up for e-mail notification. If you're interested in receiving an e-mail notifying you every time a new blog is posted, then please enter your e-mail address in the box at the top right of the page where it says: Follow me by e-mail. Additionally, I have added a Facebook badge, which will link you directly to my Facebook page. The link to my "PatientslikeMe" page is still there, of course, if you want to keep tabs on my current condition. As always, please feel free to link this blog with a blog of your own, your Facebook page or twitter account. I encourage you to share this with anyone who may be interested. Awareness is just the first step towards treatment and a cure!
Some facts you should know about ALS. ALS involves muscle weakness, wasting and paralysis of the muscles of the limbs and trunk as well as those that control speech, swallowing and later breathing. Approximately 5,600 people in the U.S. are diagnosed with ALS each year. It is estimated that as many as 30,000 Americans may have the disease at any given time. The life expectancy of an ALS patient averages about two to five years from the time of diagnosis. There is no CURE!
About Me
- DarinM
- For those of you that don't know, I was diagnosed with ALS in March 2007. After two more opinions, the diagnosis was confirmed in the fall 2007 at age 39. This coming August (2010) I will have been married for seven years to an incredible wife, who has supported me throughout. During the course of our marriage we have been lucky to have two wonderful, amazing daughters. Sydney, will be 5 in November. Emily, will turn 2 1/2 in August. Currently, we reside in New Jersey with our Beagle, Trixie.
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